The Brief, Beautiful Life of Daphne Jane Gainer: Heart Walk Schedule of Events

Monday, August 29, 2011

Heart Walk Schedule of Events

The Utah Heart Walk is on September 17, 2011, at Sugar House Park. Here's when everything is happening:

7:30 a.m. - Run Registration

8:15 a.m. - Kids Fun Run

8:30 a.m. - 5K Run (Timed Race)

9:10 a.m. - Heart & Stroke 1-Mile Survivor Walk

9:15 a.m. - 5K Walk (Join Our Team!)

10:00 a.m. - Run Awards

10:20 a.m. - T-shirt Contest

10:35 a.m. - Closing Ceremonies

1 comments:

Julie MAugust 31, 2011 10:15 AM
Rachel,I've never met you but my brother is Dave Walker and I've actually met your husband once. I found your blog through Marci's and I've been very touched by your story. My kids and I have joined your team to walk in Daphne's honor!
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A Brief, Beautiful Life

Daphne Jane Gainer was born on January 20, 2011, in Birmingham, Alabama. She was adopted one week later by Will and Rachel Gainer, residents of Salt Lake City, Utah.

Hours after birth, Daphne was diagnosed with a congenital heart defect (CHD) known as pulmonary atresia, which prevents blood from returning to the lungs to receive fresh oxygen and results in a severely underdeveloped right ventricle.

Living with just half a heart, Daphne spent all but three days of her life either in the hospital or on supplemental oxygen. She endured three extended hospital stays, two heart surgeries, one heart catheterization, and countless needle pricks, blood draws, and other tests.

Daphne passed away on March 18, 2011, just hours after undergoing her second heart surgery. Her life on earth lasted just 58 days, but it was both miraculous and inspiring.

This blog is maintained by Daphne's mother, Rachel Gainer. It celebrates Daphne's life, explores the realities of grief, and affirms that death is not the end and families can be together forever.